A Week
Away from Boredom
Mattie
and Peggy were two of our most disabled guests.
They could neither of them speak, stand, walk, or feed themselves
properly. But, having lived in the same
ward in hospital for a year or more together, their communication was
immaculate. Listening to them conferring
early in the morning was to be reminded of the old-time character of Horace,
the little boy who used to talk in scribble and had to be interpreted by a
slightly older sister, Winnie. How we used to wish we had Winnie with us when trying to shorten the session spent
trying to unwind the inarticulate sounds from our two merciless persecutors.
What
made our task more difficult was that both Mattie and Peggy were mentally
alert. They could not resist the
temptation to crack a joke, however hard it was to get it appreciated. Their lack of speech provided them with
endless entertainment and seemed not to inhibit their conversations on
iota. Some vague comment from Mattie
would reduce Peggy to helpless laughter, while we would puzzle what on earth
she had said which was obviously so funny.
It would be repeated several times, followed by gusts of mirth from
Peggy until she, also, made an effort to explain and
Mattie would be convulsed. At long last,
we would attempt to repeat what we thought might have been said and this would
precipitate paroxysms of chortling merriment because it was apparently
completely inaccurate. Eventually, the
whole pantomime would be resolved by one of them demanding a piece of paper and
a pen, and it would be written down for our enjoyment.
Occasionally,
we would succeed in unravelling the mysterious sounds with little effort and
then we were rewarded with beaming smiles that we had shown some
intelligence. It was a constant marvel
how it was that neither of them had any difficulty in understanding the other.
Mattie
had only one child, a daughter, who lived in
Both
Mattie and Peggy were so rewarding to take.
They had long ago accepted their disabilities and had extended their
capacity for enjoyment far beyond the limits of imagination. To be able to anticipate the possibility of
being prised from the absolute security of the geriatric ward of a hospital and
to entrust themselves to a group of strangers for a week in a strange place,
must have been to them on a par with a trip to the moon. Their courage was almost beyond belief.
There
were others. Gwilym’s
cancer of the throat had developed until he could just swallow solids. He wrote to us, unbeknown to his wife, asking
for an application form, so we called to see him. Amid protests from his wife, we filled in the
application. The doctor did not advise
the trip but just accepting the possibility seemed to give Gwilym
a massive moral lift. He began to
discover he could manage to eat more easily and could occasionally drink. The holiday day arrived and Gwilym and his wife were collected in the Minibus, and went
to the embarkation jetty by road. He had
his holiday, but we did not take him the following year.
Ellen
was just such another heroine. She was
afflicted with Multiple Sclerosis and Parkinson ’s
disease. By some will-power, she had
insisted that she wanted to continue to live at home long after others would
have succumbed to constant professional advice and accepted a place in
hospital, where life would have been safer, more comfortable, but more
dull. Ellen was not interested. By means of all the aids and adaptations
which the authorities could provide, she looked after herself at home, sitting
up against the window where umpteen people each day waved to her as they went
by. For her holiday, she was strapped
into her chair and pushed into the guard’s van, where other passengers passed
and repassed and held conversations with her. At the end of the journey, she was almost
exhausted, and frequently opted for bed soon afterwards. But the next day, her eyes would be open and
lively as soon as the birds started twittering.
She would know to the smallest garment what she wanted to wear, and where
it was likely to be found. At breakfast,
she would regale the rest of the folk at her table with descriptions of her
flat, her Home Help and her family. With
a short afternoon nap, somehow she would maintain vivacity and interest until
the last waltz had finished and the rest of the company were off to their rest.
Not that she did not have occasional bouts of depression, but
they were so fleeting that it was easy to miss them altogether. These usually afflicted her early in the
morning when no-one else was about and she had little else to occupy her
mind. We would open the door, peer round
it, and see two solemn grey eyes watching our entrance. The bedclothes, tucked round her small face,
were as they had been left the previous evening. “Are you wet?”, we
would enquire and would be answered by a small, confirmatory nod. So dry clothes would be required, and Ellen
would be left to mull over the discomfort and inconvenience of her vanished
muscle power. Eventually, two assistants
would return and would pull back the bedclothes, whereupon Ellen would give a
small squeak of dismay. “It’s cold”, so
back would go her bedclothes and she would gaze up at us with her wide grey
eyes gloomy and sad. “I wish I was in my
box”, she would inform us and this was a signal for action. The clothes would be whipped down to her
waist, and she would be turned over for a wash.
“No-one”, said her cruel helpers, “can possibly
be allowed to go into a box with a wet smelly bottom”. Chuckles would greet this information and
within five minutes, Ellen would be washed, dried and powdered and dressed in
the outfit she had selected for the day.
Then for the commode. “Could Bob come?”. The plea was persuasive. So Bob was located and summoned to Ellen’s
side. “Arms round my neck”. Ellen’s thin arms would clutch up to Bob’s
broad shoulders and with one mighty heave, she would be lifted from the bed and
dropped gently onto the commode at the side of her bed. Her blanket would be wrapped round her
useless legs, and she would be left carefully propped while the toiletries were
put away, the bed stripped and remade and her chair opened and prepared with a
blanket, protection pad and cushion. Bob
would return in his own good time and would lift her up while her pants were
adjusted, her clothes pulled down straight and she could be seated upright
ready for the restraining strap to prevent her sliding down and off her
seat. Ellen presented another challenge
successfully met and conquered.
Arthur
had his failings. We knew them but did
we know them all? After a period of
several years after his first holiday with us, he applied again. At about the same time we received phone
calls, one from his son and another from his daughter. The daughter assured us that he had mellowed
wonderfully in his old age; he was, she said, good tempered, courteous and full
of good will to all men. With a bit of
imagination, we could almost see the halo.
His son,
apparently at a loss to know ho to get his old dad a holiday without having to
tolerate his company personally, impressed on us how pathetic was the old
man. His sight was failing, he said and
we knew this to be true. He walked only
with difficulty which we accepted with a pinch of salt. We had seen him out from time to time,
crawling along between two sticks unless he was sure that no one was within
spying distance when his two sticks barely seemed to touch the ground as he
disappeared among the thronging crowd in the congested aisle of the supermarket
like a rabbit seeking cover.
So Arthur
came. It was two peoples concerted
effort to get him on to the coach. He
seated himself in the nearest front seat, arranging his sticks, his holdall and
his sustenance for the journey, by his feet.
Settled
in what he considered was his rightful place in the most coveted seat, he
thrust his hand into his jacket pocket and pulled out his pipe.
“You
can’t smoke in the front seat of the coach” he was told quite firmly. His protests were heart rending.
“Surely
I can enjoy my pipe” he bellowed. “There
is little else for me to enjoy in this world”.
It
continued ad infinitum. He was old; half
blind; he could not possibly be expected to crawl
further back in the coach; he had not been told that poor disabled people would
be ill treated when they were expecting to enjoy a holiday after many
years. The coach stood stolidly, its
waiting passengers half sympathetic, half exasperated while the dialogue
increased in volume. Until the impatient
escort, in desperation, snatched the offending pipe from between his fingers
and the driver was permitted to start the journey.
The
argument continued with Arthur attempting to leave his seat to wrestle with his
opponent. A sudden lurch deposited him
back into his seat and he let out a wail of pseudo pain. No one took any notice. The escort did not turn his head and Arthur’s
protest diminished into a surly grumble of complaint.
At the
halfway stop, Arthur was offered an arm to get him to the ‘mens’. He attempted to continue his tirade but his
escort had been forewarned. He was told
abruptly that if he wanted to spoil his holiday by starting off on the wrong
foot, no one would be anxious to help him.
Arthur persisted, so the helpful arm was withdrawn and Arthur left,
teetering in his usual pathetic gait, to continue on his own. He found himself isolated in a congestion of
the hurly burly of scurrying passengers.
As he approached, the swirl of hurrying people parted like the
At the
end of the journey, he found himself allocated to a single chalet. This was invariably regarded as a special
honour by most guests but in this instance it was a precautionary measure to,
as far as possible, segregate the nuisance potential from other victims.
Arthur
fancied himself as a vocal musician. He
certainly could sing; he had a curious talent for adopting a high pitched
falsetto voice in imitation of a full throated soprano. Had he been content to introduce this strange
phenomenon initially at a pukka recital, it might
have resulted in a storm of applause which would have satisfied his hungry
ego. But the strange female voice
interrupted many an animated discussion; the rendering of “Only a Rose” behind
a crowd involved in a discussion by a silver voiced lady, was seldom regarded
as entertaining. On investigation to
discover from whence came the soloist, the group would be astonished to see a
strange individual, balanced between two sticks and laughing uproariously at
his performance. This happened
frequently several times a day. Had the
performance been given to a proper audience, it is likely that it would have
continued indefinitely. Arthur did so
enjoy it. He would have had to be halted
by physical effort. Meanwhile, everyone
kept a wary eye on the gentleman between two sticks and sidled away whenever he
was seen approaching.
It was
the third evening when the commotion occurred.
Arthur had been seen wandering around with a bundle of music under his
arm. As usual, everyone assumed an
exaggerated lack of interest.
Eventually, the frustrated vocalist sought solace in several times his
usual ration of tipple. He stationed
himself at a small table in front of the bar and when he stood up, he had
acquired a gait somewhat like a passenger on the deck of a rolling ship. One of the escorts, noting his unsteady
condition, suggested he looked tired and he might like to go to bed. This was met by an indignant rejection but
when he was offered a ride in a wheelchair, discretion triumphed and to the
relief of several nearby, who had been watching him with some concern, he
allowed himself to be wheeled away.
All was
peaceful until about
Several
helpers were outside the door; the light was on and from inside came the
falsetto tones in full voice. The door
was locked and the night watchman was summoned to open the door but to no
purpose, as the knob inside had been pushed down to prevent the key
operating. Constant shouts served no
purpose. Each time Arthur was asked to
get out of bed and let in the callers, the request was rejected; everyone knew
he could not walk; he was enjoying himself and sending himself to sleep by
singing. Threats, pleadings and
arguments availed nothing. Lights from
dozens of chalets around the Camp were switched on while the weary watchers
wrestled with the puzzle.
Then
someone noticed that the big picture window at the front of the chalet was not
fastened securely and by constantly pushing it backwards and forwards, the
latch seemed to be coming away from the fastening. At last the big window opened and the helper
climbed in. She lifted the startled
Arthur to a sitting position and, whipping the clothes away, pulled him to his
unsteady legs and pushed him towards the toilet. The singing stopped abruptly and howls of
alarm and protest filled the stillness of the night. He shouted that he was being tortured,
bullied and treated abominately but no one took any
notice. He was dragged from the toilet
seat and pummelled back into the chalet and into his bed. He was pushed determinedly over with his face
to the wall, a pillow thrust firmly into his back and a none
too gentle hand thrust his head into his pillow.
“Another
squeak from you tonight, my lad”, threatened a furious voice, “and you’ll be
taken back home by car in the middle of the night”.
Whether
the unusual activity at
Gradually,
the lights in the chalets around the wide green lawn disappeared. Whispered conversation subsided and peace
settled over the quiet night.
Lucy was
permanent resident in a psychiatric hospital.
It was her husband’s idea that she should join our party on
holiday. He had great hopes that a week
in happy holiday conditions would restore her poor depressed brain to something
like normal. We had our doubts but we
could not refuse to co-operate. Lucy’s
drugs, with full instructions on correct dosing, were collected from the
hospital. Lucy’s husband listened
dutifully. He took them home, and left
them ready to pack on the sideboard in the dining-room. Both the cases were ready for us, correctly
labelled, standing by the front door. We
collected him and drove to the hospital and called for his wife at her
ward. Her melancholy expression thawed
somewhat as we tucked her on the inside seat beside her husband on the coach.
It was
about
We found
Lucy a mild sedative and saw them both into bed with as much reassurance as we
could muster. Our confidence evaporated
as we met for a council of war. Our
unanimous decision was that we would risk leaving Lucy un-sedated for
thirty-six hours and seek an emergency prescription as soon as possible on
Monday morning. We would have to keep a
close eye on Lucy’s condition and take emergency action should she show signs
of disturbance. Wishful thinking gave us
the feeling that all would be well.
--- but it wasn’t. At
It
seemed worth trying. We had no
prescription but we had two S.R.N. certificates between us. A quick rush to our chalets, a quick rummage
in our cases and we were back in the car within four minutes. It was a distressingly frustrating crawl to
the main road. Dozens of strollers
meandered along the road towards their mid-day meal. Seemingly reluctant, they moved leisurely
towards the side of the road to let us pass.
The car edged around wheelchair pushers and walkers on sticks or crutches. It took every atom of patience not to
increase speed.
At last
we reached the road, and, taking advantage of a clear thoroughfare, sped
through the empty village at 40 m.p.h. Beyond the houses and between the fields, the
speed signs allowed us to increase our speed, so our needle crept up to
fifty. Lights a mile ahead along the
smooth straight road winked from amber to red and then back to green as we
raced towards them.
Then, no
more than thirty yards ahead, a large dark blue figure appeared, a massive hand
held up above the white stripes of his cuff.
We slowed to a halt beside him, our trembling hearts in our shoes, and
our limbs reduced to a quaking jelly. He
thrust his head down to our off-side window.
“Please draw into the road on the left, and
park inside the cones”, he requested.
His disarming courtesy did nothing to allay our trepidation. We did as we were told. Two more massive blue arms crossed themselves
on the edge of the open offside window.
Another blue-capped head appeared and a mouth opened to speak but I
forestalled his attempt. With my most
appealing expression glued to my face, I pleaded. “Will you be keeping us for long?”, I beseeched him. “ We need an urgent supply of drugs for a mentally ill
patient at the Camp. The chemist closes
in
My
companion giggled idiotically. “What are
you laughing about?” “He believed what
you told him”, she gurgled. “Well, it
was the truth”. “I know”, she replied,
illogically, “that is why he should not have believed
you”.
Which I
suppose is what should have happened but our luck was on our side. Not only did we avoid prosecution, but our
chemist was late in leaving to attach his Sunday joint. On production of two official nursing
certificates, he supplied a small packet of the tablets required on our promise
to confirm it with a prescription from the local GP on the following day.